Misophonia Freedom Project

What is the Misophonia Freedom Project?

There has been a long time narrative that misophonia is an untreatable neurological issue. Basically, treatment for misophonia has been extremely lacking and people have been suffering. Luckily, more research is taking place, but misophonia a complex thing to tackle.

As I began treating misophonia, I started hearing stories from people who were FREE from misophonia (or a lot better!).  I connected with two other misophonia clinicians, Sara Bidler, LMFT & Kresta Dalrymple, LMFT who also were hearing about freedom stories.

We joined forces and are collecting stories from people who have healed, who are free. While no two stories are the same, we are documenting what therapy modalities or strategies have helped people.

If you fall into the category of someone who is free of misophonia or a lot better, please reach out! Let’s find out what the commonalities are in the treatment of misophonia.

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Joey's Story

Video Interview by Sipora March 2024. Transcript Coming Soon…

Brooklyn's Story

Interview and Write-up by Sara Bidler
Dec. 2023
Finding Freedom from Misophonia: Brooklyn Disch’s Story

Brooklyn Disch (she/they) endured severe misophonia for approximately 20 years, starting
around the age of 7. She successfully cleared misophonia in February 2023 and is now
dedicated to helping others find their way to freedom from this condition. She rates her
misophonia at a 12 on a scale of 0 to 10 in severity before her breakthrough, with it now being
at a 0.5. In describing their relationship to sounds/triggers now, Brooklyn notes “It’s not that
there’s never a moment of annoyance with sounds, but (former) triggers no longer cause me to
feel like I’m in danger or to feel disgust, anger, fear or anxiety. If I notice them, it doesn’t take
me out of the moment. It’s just something I notice. Most of my previous triggers I don’t even
notice at all.”

Their main misophonia triggers included whistling, throat clearing, S and T sounds. Classroom,
home and work settings were challenging, and everyone triggered them with these sounds,
remarking “If the person knew I had misophonia, it triggered me more because it felt like they
should know better.”

Through a combination of various modalities including Emotional Freedom Technique (EFT),
hypnotherapy, Rapid Resolution TherapyⓇ (RRT), meditation and Neuro-linguistic
programming (NLP), she rewired her brain’s response to trigger sounds, with RRT being the
most influential modality.

Brooklyn trained in these modalities originally for her coaching business and was also applying
them to improve many aspects of their life. It was some time into practicing them that she
thought to apply them to her experience with misophonia, noting:
Then I had the realization that misophonia is a developed pattern, just like anything else.
Our unconscious mind interprets a sound as danger, creates an emotion in us such as
disgust/anger/fear to get us to take an action to eliminate “a threat” (that action can be
putting in ear plugs, leaving the room, asking someone to stop, etc.) and the more the cycle
continues the more we feed into this pattern, through no fault of our own. We’re just doing
what the unconscious mind thinks we need to do to survive. But the more we feed into the
pattern the stronger it becomes and the more intense our reactions get because these things
are becoming encoded as more and more dangerous, and of course we’re developing more
and more triggers at the same time.

Brooklyn did specific work on rewiring her brain’s response to triggers but she did not have to
do work on each trigger individually for all of them to clear. In fact, the misophonia rewiring
work helped with their fear of spiders (despite no conscious focus on this fear).
Upon deeper contemplation, Brooklyn ponders whether the self-development efforts she
undertook before discovering RRT established the groundwork for RRT’s effectiveness in
addressing her misophonia. She feels none of it was a waste of time because “it’s all a learning
experience.”

Here are some things that possibly set the stage for Brooklyn’s relief, in no particular order:

  • 10+ years of psychotherapy (starting at age 15), which didn’t make a noticeable difference with misophonia but did give them a lot of life coping strategies and validation of her experience.

  • Having a supportive parent: “My mom has been in my corner and is always an advocate.”

  • Sertraline, which was prescribed to address Brooklyn’s generalized anxiety, as she was experiencing symptoms that mimicked multiple sclerosis.The sertraline didn’t help with misophonia, but did give Brooklyn a “better foundation” to then engage in the work to lessen misophonia severity.

  • Strengthening family and other relationships; setting boundaries where needed.

  • Switching from shaming herself when outcomes are less than ideal self-compassion and reflective learning.

  • The use of EFT/Tapping to release emotions, including those experienced after being triggered by noises.

  • Shifting their perspective about misophonia from, “Nothing will ever work; I’m stuck with this for the rest of my life” “I don’t deserve this, it isn’t my fault (or anyone’s fault) and also ”

  • Anchoring into something bigger than herself and tapping into her intuition.

  • Having an understanding partner and daily time free from triggers to reset and practice the skills they were learning, while also understanding that “avoiding trigger sounds all together wasn’t the answer because it reaffirmed in my mind that these things are dangerous.”

  • Asking for help and being open to receiving new ideas.

  • Journaling to their younger self and reflecting on whether the original function/belief of something still applied to their present-day life (this is along the lines of trauma work).

  • Learning to advocate for herself.

  • Clearing reservations about lessening their suffering from misophonia, which included possibly losing acceptance in the misophonia community and naysayers potentially saying, “See, I told you so, it wasn’t real.”She also faced the question, “Who am I without misophonia?”, as rage and frustration were her primary emotions most of her life. She used hypnotherapy to detach from the misophonia identity.

  • Transitioning from being a “very pessimistic, depressed, and anxious” person being “an optimistic positive person”, which was kicked off by facing their fear of flying and traveling with strangers on their first ever solo abroad trip to Egypt. The trip helped her see how strong she really was: “It gave me a lot of my power back. I realized I can do it.” This experience empowered them and led to leaving an unsatisfying job to start their own company.

  • Interrupting the thought spiral of, “Why is this person making this noise? Do they know how annoying this is, etc.?” which led to avoiding certain people based solely on the sounds they make. Replacing with a reminder that these thoughts aren’t serving her, and she can dismiss the thoughts and choose something different.

Because there seems to be a theme of people with misophonia being empathetic and/or highly
sensitive, here are Brooklyn’s responses to those questions:

Do you consider yourself a Highly Sensitive Person (HSP)?
“Growing up I was a highly sensitive person. My mom had to cut off the edges of my
socks. I wouldn’t wear jeans until I was older. Those experiences came up in the work.”
Brooklyn finds herself to be more aware of the energies and moods of others than the
average person, noting, “I can walk into a room and tell something is off.” She considers
herself a very spiritual person and being very in touch with energy and the things
around her.

Do you consider yourself an empathic person?
When they took the Clifton Strengths Assessment (for which there are 34 themes),
empathy was their #2 strength.
Their mom has always described Brooklyn as a very empathetic person. Now they’ve
“learned how to turn it off” as needed. RRT was helpful to her in that, as they “talk
about empathy a lot and when it’s helpful and when it’s not.”

In terms of maintenance efforts, Brooklyn reminds her mind that feeling calm and at ease
around noises that used to be triggering is safe to experience. She also mentioned that while
serving her clients, her mind is soaking up this rewiring work in the process.

Brooklyn’s story emphasizes the power of introspection, reprogramming, and a multifaceted
approach to healing, not only from misophonia but also from ingrained and problematic
relational, cognitive and behavioral patterns. She now stands as inspiration, helping others
navigate their paths to freedom from misophonia’s grip.

You can learn more about Brooklyn Disch and her coaching
services at www.brooklyndisch.com.

Brooklyn also hosts the Let’s Ditch Misophonia Podcast

Moxie's Story

Video interview by Sipora 2024.

 

Paige's Story

Transcript and interview by Kresta Dalrymple, LMFT

Paige can remember feeling “extreme sensitivity” to her surroundings from the age of 4. This experience that she later could identify as Misophonia was triggered by common noises found in the classroom, made by ear/nose/throat, household pets, eating, and visuals of hands and feet. Paige notes that while “every once in a while” a particular person would be a trigger, she more often dissociated from her “fierce, strong emotions” towards people and would become obsessive about the sound or motion so “it” would just happen to be triggering.

Paige reports that the severity of her experience with triggers was a “10” as her daily life choices, environment, social interactions, and overall sense of well-being was largely determined by Misophonia. Despite the pain of her experience, she considered herself to be a “functional” Misophone.

Now Paige rates her Misophonia as a “1-2”.  She reports “I don’t think I’ll ever not be “aware” of certain behaviors / triggers. In these moments though, I have 100% self-regulation and can remain an observer vs. allowing any primal responses to take over the situation.” Paige reports she has maintained this level of “freedom” for the past three years.

Paige’s healing journey started out of sheer need for survival due to experiencing multiple ACE’s (adverse childhood experiences) growing up and developing serious health issues. She also found that common behaviors to cope with her traumatic experiences (substance use and an eating disorder) were quickly proven to not be good for her “even though it felt good—for a brief time—I was always guided back to a path of healing”.

When asked if Paige identifies as HSP (Highly Sensitive Person) and empathic she replied, “Absolutely. I am incredibly sensitive to colors, sound, light, vibration, emotions and am attuned to subtle energies. It’s been stated that it’s one of my superpowers as a space holder, people manager, listener, teacher. Empathy combined with deep loving compassion.”

Paige credits her deep connection to a holistic, mind/body/spirit focused modalities of healing as being essential to her finding relief from not only past traumas, but Misophonia as well.

“I have always been drawn to ancestral, generational healing, connection to nature, and plant medicines…”

Paige considers plant medicine as a powerful tool for grounding and centering. She shared two journeys where the nature of Paige’s Misophonia was revealed. The first journey’s intention was to understand the part of her brain that was getting activated when triggered.

 “On my journey I was able to see that part of my brain that ‘lit up’ when hearing triggers. It was sensitive to the sounds, but then I noticed a ‘glitch’ which seemed to be the Misophonia. In getting curious about the ‘glitch’ I realized it was parts of me that were missing, and I needed to call them back”. This led to deeper healing of past traumas and the development of deep compassion for “little Paige” and all she had experienced.

In a second journey she received insight around her need to heal physically. “While the first journey highlighted the need for spiritual healing, the second highlighted the need for physical healing of the body and grounding to the earth”. Understanding the healing power of food, herbs, and teas were part of this process, as well as connection to nature and the idea of “mutual reciprocity” with nature and the earth. Paige reports that these two pieces were key to healing her auto-immune symptoms as well as Misophonia.

When asked which of these factors Paige believes played a role in getting to a better place with Misophonia she replied, “all of the above!”:

  • Agency over your workspace and home environment

  • Addressing unhealthy relationship dynamics/setting boundaries

  • Addressing shame

  • Addressing lifestyle/health issues

  • Trauma healing

  • Reconditioning work specific to triggers

  • Learning to advocate for yourself

  • Changing the way you think about triggers/trigger people

  • Other (getting in touch with your anger, learning how to process emotions, relaxation practices, etc.)

When asked about any maintenance work she does, she replied, “I see my relationship with Misophonia as a sacred one, it shows me areas of my life and self that need healing”.

Here are some of the things she practices:

  • A daily practice to be aligned to my healing journey “I think this is true for anyone who has experienced deep/transformative healing that crossed physical/emotional/spiritual planes”

  • An everyday check in with myself – meditate – sit with my body in breathwork and some type of physical activities (somatic release–the most helpful in terms of cellular healing).

  • Actively journal or have some form of personal expression (even if that’s humming sounds, instruments, cooking, even putting on makeup or sending a message to a friend that I haven’t spoken to, but has been on my heart)

  • Give gratitude to my heightened senses with Misophonia whenever the memory arises in me. I’ll see/notice something that would have triggered me to the point of fleeing/crying/distraction and observe my present response (which is not reacting) and I offer myself grace and gratitude for the awareness and strength it’s taken to face that deep fear in my being.

  • Challenging myself to be in difficult situations is part of maintaining clarity on the healing journey as well (it’s like a balance test)

Paige shared that hearing other people’s stories on “The Misophonia Podcast” was key to her understanding and having compassion for her experiences and expressed much gratitude for the people who shared their stories. When asked to consider what she would like to transmit to the Misophonia community, Paige reflected that “I see Misophonia as my greatest gift, and in that way I find it sacred. It’s a treasure chest of learnings and of wisdom I can keep going to for deeper insight and healing. I realize now that it is my superpower and that it can be used to connect with others for collective healing—like a sacred society—I am excited to explore other people’s gifts with them and honor the ‘sacred self’”.

Paige offers coaching around Misophonia healing she calls “Sonic Reclamation through her non-profir organization “The Warrior Sanctuary”. Connect with her HERE.

 

Lisa's Story

Lisa went from a level 10 in distress to a level 4 after an intensive therapy session.

Kim's Story

Interviewed by Sara & Kresta Jan 2024. Write Up by Sara.

Misophonia emerged in Kim’s life in her late 50s, along with dystonia. She also received a diagnosis of dysautonomia at this time but looking back she sees the dysautonomia likely accompanied her since childhood (as something she had a predisposition towards and got activated by adverse childhood experiences). The dysautonomia came out fiercely when other health issues were present for Kim such as Lyme disease, occupational asthma, breast cancer treatments and finally with dystonia. Extreme fatigue was the main symptom at these times, as well as significant drops in her blood pressure.

The dystonia (which presented with movement symptoms) showed up in 2014 and along with it came intense sensory issues, misophonia, ear worms, anxiety that was “through the roof” and more.

In 2016, Kim found a lifeline in Dr. Farias’ Dystonia Recovery Program, and embarked on a transformative journey that led to the disappearance of misophonia by 2018. By this point, she was 95% asymptomatic from the motor and non-motor symptoms of dystonia and dysautonomia.

But in 2021 the stress of the COVID-19 pandemic and undiagnosed orthostatic hypotension (due to a recent full time move to Tampa where heat and humidity strained her symptoms of dysautonomia) triggered a setback. The motor and non-motor symptoms of dystonia and dysautonomia resurfaced, accompanied by misophonia.

Undeterred, Kim implemented Farias’s protocol once more and the misophonia was one of the first issues to completely abate, by 2023. As of this interview (Jan 2024), Kim is 90% asymptomatic of all other related issues.

Kim’s misophonia primarily manifested as an intense aversion to her husband’s nighttime breathing (not snoring) in 2014, a time marked by dysautonomia-induced insomnia. Curiously, the sounds of her dog and cat in the same bed, including the dog’s snoring, provided comfort rather than irritation.

 When the misophonia returned in 2021 her main triggers were her husband chewing and the voices and manner of speaking of two friends who had huskier voices and were boisterous storytellers (noting it would send her into a rage). By this time in life, her and her husband had both decided they like their personal sleep space so the nighttime breathing issue didn’t return.

Kim believes her husband was such a trigger because of living together, not because of any boundary issues or repressed anger towards him. She noted, “We get on great and are a bonded couple.” She saw that the sounds of others would start to bother her if she was visiting/staying with another person for a longer period of time.

For some additional context, the perpetrator of her trauma when she was 7 was a man – a neighbor who was quite a “boisterous story-teller”.  Kim has no doubt that despite it being decades later in her life, the combination of being “neurologically overwhelmed” and around reminders of this past trauma (close breathing, chewing and jovial yet self-serving storytelling) triggered a trauma response in her.

Before engaging with Dr. Farias’ program, Kim rates her misophonia at a 10 (from 0-10) in terms of outrage, with a rating of 4 in terms of impact on her life, given the bigger health issues she faced. Now Kim rates her misophonia at a 0 on both scales. Kim notes, “Misophonia looks SO different to me now.  I simply can’t believe I felt so strongly, so negatively about something that was no one’s fault. “

Kim’s approach to addressing misophonia centered around Dr. Farias’ extensive protocol, with the addition of finding solace in avid hiking. The program, accessible via videos at dystoniarecoveryprogram.com, involves doing neurorelaxation and neurostimulation movements to balance the nervous system. Farias’ theory is that dystonia uninhibits previously inhibited childhood reflex poses (such as moro, grasping, rooting) and so the program also works to inhibit them again.

For Kim the program involved:

  • Movement-Based Exercises: These exercises aimed at fortifying weakened muscle-brain neural connections. The program incorporated uninhibited childhood reflex poses into the movement therapies. Kim diligently adhered to three 10-minute sessions daily, recognizing the necessity of daily practice for neuroplasticity to take effect.

  • Daily Neuro-Relaxation Work: This component involved different types of neurorelaxation, one of which was slow, low abdominal breathing exercises. Kim noted that individuals with dystonia often exhibit chest breathing and short exhales.

  • Interhemispheric Brain Stimulation: This facet engaged Kim in listening to music engineered by Farias to specifically stimulate the right hemisphere of the brain. The regimen also included daily brisk walking and participating in dance videos on Farias’ site, featuring primitive movements

  • Tracking, Syncing, and Peripheral Eye Exercises: Dr. Farias designed exercises involving tracking, syncing, and peripheral eye movements, addressing left-eye issues prevalent in all his patients. These exercises were instrumental in correcting eye imbalances, ultimately fostering better autonomic nervous system balance. Kim disclosed that the eye exercises induced emotional release, evoking tears without specific associated memories. In discussing the primitive reflex exercises and the other protocol practiced, Kim and fellow participants attested to them being equally helpful when it comes to mental health.

As misophonia started to relent, Kim employed a strategy of “rationalization” during trigger moments, reminding herself the trigger person was doing nothing wrong. But she noted that when misophonia was at its worst, this type of self-talk did little or nothing.

In 2022, while revisiting Dr. Farias’ protocol, she participated in 20 sessions of hyperbaric chamber treatments (thanks to living in close to a neurologist who offers this service), which she believes strengthened the progress made with Farias’ protocol in regard to sensory hyperarousal, social anxiety and PTSD-type symptoms. Maintenance work continues as Kim stays connected with the protocol.

In exploring other factors that may have contributed to Kim’s misophonia journey, the following aspects merit consideration:

  • Kim recognizes herself as a Highly Sensitive Person (HSP) since birth – sensitive to things like fragrances, food, and social situations. Interestingly, the headaches she used to get from perfume went away when her nervous system got balanced.

  • She considers herself an empathetic person, which she sees as both a blessing and a curse.

  • She no longer harbors any shame and expresses a strong sense of self-acceptance

  • She was going through menopause when misophonia showed up the first time.

  • Traumas from her childhood prompted a lot of self-help work in her 30s and 40s, which she believes created the foundation for her to embrace Dr. Farias’ program with enthusiasm. The self-help work helped her release the anger she was carrying, shift away from using “escapist behaviors” as a primary means to cope with life, and to recognize that the traumas in her life don’t define her destiny.

Kim’s story is a testament to human resilience and the powerful transformation that can take place with addressing nervous system imbalance, which Kim did primarily through physiological means.

The picture above is not of Kim, but was submited by her because it was her hikes in nature that helped her the most and “is a beautiful thing”. Kim prefers to stay mostly anonymous, staying active by serving the community she has connected with through dystonia recovery. Kim sees a lot of parallels between dystonia and misophonia in how both are “hard to understand” and have been largely dismissed or ignored by the medical community. She hopes that something she shared here helps someone with misophonia or dystonia.

Kresta's Story

Written up by Kresta, 2024.

Starting at age 12 my family’s chewing noises drove me to tears from what — at the time – seemed to be an illogical, hard to describe sensation of extreme discomfort that felt like torture until the sound stopped. It would be another 15 years before I heard someone describe my experiences on a radio interview. I can remember the relief in knowing I wasn’t alone and that what I was experiencing had a name – Misophonia – or “Select Sound Sensitivity Syndrome”. The relief was short lived however. As I found and connected with others having the same experience, we started to look for some thread of commonality that would explain what was wrong–and then fix it. Time and again, our hypothesis were proven wrong–some had trauma, others did not, co-occurring conditions such as Autism, other sensory sensitivities, eating disorders, physical abnormalities in the ear and brain…no common thread was ever found. All that was left was the cold comfort that others were suffering in the same way and that “coping strategies” were the only option.

I suffered with Misophonia for 35 years…

Years later as I entered graduate school I made it my mission to learn all I could about Misophonia. It was also an opportunity to practice self-advocacy and those “coping strategies” as my school allowed eating in the classroom which was my own version of hell. If anyone was going to be understanding of my condition it would be aspiring therapists—and most were very understanding and accommodating however, even the most understanding would quickly forget and eat chips or other crunchy snacks in front of me. After one particularly painful interaction with an individual who was not understanding I broke down—the pain of my triggers coupled with the pain of social misunderstanding and rejection was a weight that I had carried for so long—it felt like a wound that was constantly poked and never allowed to heal.

Part of my journey to become a therapist included participating in my own therapy. I lucked out and found a wonderful therapist who introduced me to brainspotting and supported my growing interest in Internal Family Systems (IFS) also known as “parts work”. It was ultimately these two modalities that lead to huge shifts in my relationship to the almost constant feelings of guilt and shame connected to my Misophonia. I soon realized that my body was carrying the trapped energy of all the rage I had fought so hard to control when triggered. Shame – a survival instinct to prevent us from harm by more powerful others—was a very effective way to “keep it all down”. The drawback to that is I was stuck with all that negative energy. My body was in a constant state of tention and my brain was hypervigilent for the next possible trigger sound.  Just like with my clients who have experienced trauma, I realized the key to healing is finding a way to release that energy – and I kept following that path.

I can now say with confidence that I no longer have misophonia. I realize what a bold statement that is. Unfortunately, I cannot guarantee that what ultimately freed me from it will be the same for you, but I can tell you that what I learned along the way greatly improved my life and gave me amazing insight into my own needs, values, and boundaries. The huge feeling of relief that brainspotting and “parts work” provided was key—and I want to share what I’ve learned with you to co-create a plan for meaningful relief and healing.

I remain committed to supporting others on thier healing journey and educating more therapists on what misophonia is and how to help people find relief. 

You can hear more about Kresta’s story on The Misophonia Podcast PART 1 & PART 2.

Contact Kresta Dalrymple, LMFT HERE

Get In Touch 

 

Call

805.669.8176

Location

5550 Telegraph Rd. Ventura, California 93003

Located near Ojai, Santa Barbara, Oxnard, Camarillo, Thousand Oaks.

Also seeing clients for online therapy all over.